Nolan (Age 7) Acrylic Painting "SHINE"
Nolan (age 7)
Acrylic painting on canvas
Signed to lower left
Nolan has been a patient at CCHMC almost his entire life. At the age of 2, he started to lose skills instead of gain them, leading to years of appointments, tests, consults, and more until he was finally diagnosed with a rare epileptic encephalopathy. Through the years, it was discovered that Nolan had a genetic mutation that has led to him being a frequent flyer at CCHMC. He sees a variety of specialties and we are so thankful for his team of doctors and therapists who have dedicated a significant amount of time to learning about his condition and fighting for innovative treatment options and research. Nolan’s canvas primarily demonstrates the logo of his genetic mutation, SHINE Syndrome, and the purple ribbon for epilepsy awareness. Nolan is the only patient at CCHMC with this genetic disorder and we feel thankful that so many caregivers at CCHMC are dedicated to learning about and treating rare conditions.
- no apparent conditions to note.